BARBARA CELLINI
Executive Director
CHARLES GRUBERMAN
President
JOHN FASO
Vice President
MARTIN MITCHELL
Treasurer
CHARLES GOSNEY
Administrative Secretary
CHARMAINE DUNNE
Recording Secretary
JAMES GAROFALO
Board Member
RONALD PATRIZI
Board Member
THOMAS SHENBERGER
Board Member
Advisory Board Members
Kenneth Bouldon
Michele Cellini
Paul Cellini, Esq.
David Cifelli, Esq.
Robin Glaze
Alisa Gosney
Joyce Gruberman
Gordon Henschel
Dr. Mark Lagkervist
Dr. Ming T. Lin
Christine Longo
Carla Matthews
Dennis Murfin
Jason Nardi
Gene Nanfeldt
Laura Nanfeldt
Robert Natale
Al Rodrigues
Gia Rodrigues
Kurt Rodrigues
Edmond Smith |
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Thomas and Barbara Cellini |
The Thomas
Cellini Huntington’s Foundation was formed in 2005 to support
families diagnosed with Huntington’s Disease. Huntington’s
Disease, also known as HD, is a degenerative brain disorder that
causes spontaneous body movements, diminishes the affected
individual’s ability to walk, talk, think, and reason.
Eventually, the person with HD becomes totally dependent on
others for his or her care. The final result is a slow, painful
death.
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Huntington’s Disease is hereditary. The
children of parents diagnosed with HD have a 50% chance of inheriting
the disease. While research is ongoing, there is no cure or definitive
treatment. The Thomas Cellini family has personally experienced the
difficulty of having to deal with this unfortunate condition and
recognizes the lack of available support groups to help families
affected by HD.
The mission of the Foundation is to serve
as a needed resource for the Huntington’s Community by providing
services to those who have been diagnosed with or are at risk of
developing HD, their families and the communities that serve them. Our
commitment includes supporting research, education and testing to limit the
passage of the HD gene from generation to generation.
On behalf of the Thomas Cellini
Huntington's Foundation, we are seeking a variety of donations that
will enable us to fulfill our mission. The donation of any used vehicle,
for example, could be used to transport patients stricken with HD to and
from important medical appointments. Antiques, real estate, bequests,
valuables, cash donations and volunteers are the welcome enablers
that will make it possible for us to reach out to all those whose lives
have been affected by Huntington's Disease.
How to
Make a Donation to the Thomas Cellini Huntington’s
Foundation
We are a
501©(3) organization. Our tax identification number is 20-3854373.
All donations made to the Foundation are
tax deductible under section 170 of the Internal Revenue Code. Your attorney and/or accountant can assist in
determining which form of gift will reflect your desires and also reduce
your estate taxes.
If you
would prefer to mail your donation,
please click
HERE
for a printable donation form. You may make your
donation by any major credit card using PayPal. You do
not have to have a PayPal account or register with
PayPal in order to pay by credit card. PayPal will not
charge you for a transaction. To donate, click on the
Donate button below.
For more information on HD, our
organization, or if you have any questions, please call our office at
the number below.
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Third
Annual Dinner and Fundraiser will be held on Friday,
April 25th, 2008. Please click
HERE
for more information. Please click
HERE
for invitation. |
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